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Lack of support a major hurdle when faced with a rare disease

NEWS: 25 Feb 2021, Partners in Care

Lack of awareness and support are two of the biggest hurdles faced by consumers and whānau affected by a rare disease, disorder or health condition. This Sunday 28 February is international Rare Disease Day which raises awareness for rare diseases.

#MedSafetyWeek 2020 urges reporting of adverse drug reactions

NEWS: 3 Nov 2020, Medication Safety

From 2 to 6 November 2020, medicines regulators around the globe will be joining forces to launch a social media campaign that raises awareness of adverse drug reactions. The theme for 2020 is ‘Your report matters’.

New Serious illness conversation guide available

NEWS: 24 Mar 2020, ACP information for clinicians

A new evidence-based guide to support clinicians to have quality conversations with seriously ill people and their whānau is now available.

The voice of whānau: communication is the most important thing

BLOG POST

In 1997 Courtenay’s five-month-old daughter contracted pneumococcal meningitis and ever since has lived with cerebral palsy, epilepsy, hydrocephalus, spastic quadriplegia and scoliosis. In 2012 Courtenay’s two-year-old son was diagnosed with autism.

Keri Kaa's story

PUBLICATION: 19 Feb 2019, ACP information for consumers

Videos and posters of Keri Kaa, who has shared her personal story for the advance care planning campaign Kia kōrero | Let's talk.

Cheryl Cameron's story

PUBLICATION: 19 Feb 2019, ACP information for consumers

Videos and posters of Cheryl Cameron, who has shared her personal story for the advance care planning campaign Kia kōrero | Let's talk.

Clive Aspin's story

PUBLICATION: 19 Feb 2019, ACP information for consumers

Videos and posters of Clive Aspin, who has shared his personal story for the advance care planning campaign Kia kōrero | Let's talk.