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Lack of support a major hurdle when faced with a rare disease

NEWS: 25 Feb 2021, Partners in Care

Lack of awareness and support are two of the biggest hurdles faced by consumers and whānau affected by a rare disease, disorder or health condition. This Sunday 28 February is international Rare Disease Day which raises awareness for rare diseases.

Felicity's story: shared goals of care

PUBLICATION: 24 Dec 2020, Patient Deterioration

In this video Felicity shares her story of advocating for her mother’s wishes and values when her mother was dying.

Palace of Care – Farewell to Perlin Soong

NEWS: 11 Dec 2020, ACP information for consumers

Dr James Jap is a palliative care specialist working in Auckland. In his blog, originally published on Palliverse, he shares the story of Perlin Soong, a 32-year-old with metastatic cancer.

What would you like me to do if your heart stops?

NEWS: 21 Apr 2020, ACP information for consumers

Most of us can only imagine what having someone die in front of us would be like, but it’s part of the job for Wellington paramedic, Sean Thompson.

Worried about COVID-19? In uncertain times it's good to make a plan

NEWS: 30 Mar 2020, ACP information for consumers

Aotearoa is responding to the COVID-19 pandemic. It is an unsettling time, and it is natural for people to be anxious. However, it is also an opportunity for people to plan for a scenario where they may become suddenly unwell.

Frailty care guides | Ngā aratohu maimoa hauwarea

PUBLICATION: 12 Sep 2019, Aged Residential Care

The frailty care guides are a suite of 26 nursing decision support tools covering the spectrum of frailty from deterioration to communication and advance treatment planning.