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Reflecting on consumer partnership this World Hemophilia Day

NEWS: 16 Apr 2021, Partners in Care

Saturday 17 April 2021 is World Hemophilia Day. Deon York, senior programme manager for the Commission’s consumer engagement programme, reflects on what the day represents and how it can encourage us to improve health and wellbeing for all in Aotearoa.

Lack of support a major hurdle when faced with a rare disease

NEWS: 25 Feb 2021, Partners in Care

Lack of awareness and support are two of the biggest hurdles faced by consumers and whānau affected by a rare disease, disorder or health condition. This Sunday 28 February is international Rare Disease Day which raises awareness for rare diseases.

Commission farewells outgoing consumer advocate

NEWS: 5 Feb 2021, Partners in Care

The Health Quality & Safety Commission thanks outgoing consumer network and consumer advisory group member, Martine Abel-Williamson, for the valuable contribution she has made to the Commission's work programmes over the past seven years.

Te Kete Hauora patient advisory group workbook

PUBLICATION: 28 Jan 2021, Primary Care

This workbook was developed by the Hutt Union and Community Health Service as a tool to gather views and feedback from their consumer advisory group.

An example of effective consumer engagement by HUCHS

NEWS: 28 Jan 2021, Primary Care

In September 2020, the Hutt Union and Community Health Service (HUCHS) launched Te Kete Hauora Patient Advisory Team Workbook which has proven to be an innovative and successful tool in gathering high quality feedback and engagement.

Exploring how the way we work impacts the consumer experience

PUBLICATION: 2 Feb 2021, ACP information for clinicians

This video explores consumers' experiences of communication and decision-making, when things do not go well in health care and a clinician's perspective of what might contribute to that experience.